Letter drop off

Well, our advocate has reviewed my letter to our team lead requesting clarification on a few items. The letter is 3 pages in length. I will hand deliver the letter tomorrow after I drop Tyler off for school. Should be interesting to see what her response will be to this letter. I am sure I will receive a phone call stating my questions/concerns are just too much and that she won’t be able to provide me answers. I can just hear her now! UGH. So stay tuned. I am sure there will be a good story to share.

Tony and I have actually talked a lot about the possibility of sending him to Perkins next fall. We are going to go check out the school and see what it is like. We have continued to get comments from the therapists that show they just haven’t been listening to us. The latest came from his PT on Thursday. She mentioned she has concerns that he is sitting in his Rifton Gait Trainer instead of standing to walk. We mentioned this concern oh 3 – 4 months ago that we were afraid that is what he would do. She never listened and now suddenly its a problem. Then the whole issue of allowing him to be in the classroom on his birthday with his peers. Its just starting to take its toll. I am sure they will not be sad to hear we want out. We need to do whats best for him. Yes a lot of the fights have been purely based on principle for me. But its not fair to Tyler and he needs to be somewhere where they understand him, where they will work with him, and allow him to grow to his fullest potential. That’s another story to stay tuned for updates on.